August 2017

MND Connect 2017 @ University of Sydney 11 November 2017

Do you want to know what’s new in motor neurone disease research, current clinical trials and effective treatments for MND? Reserve your place at MND Connect, an interactive forum connecting people impacted by MND, with Australia's leading MND researchers. In 2017 this Forum will be held in New South Wales at the University of Sydney. People with a disability and their carers may reserve a disabled parking spot at the venue, or receive a wheelchair taxi voucher or subsidised travel from a regional area to attend this event. Find out more about MND Connect 2017 here.  

Woden Valley Gymnastics Club

Thank you to the Woden Valley Gymnastics Club in Canberra who donated $654.75 from their recent Pyjama and Teddy Bear Week. Pictured are the coaches from the club. A big thank you to everyone who participated and provided their support.

National Aged Care Advocacy Program

From 1 July, the Older Persons Advocacy Network (OPAN) has been engaged to provide free, confidential and independent advocacy support to older people who are receiving, or seeking to receive, Australian Government funded aged care services. see here for more information  The service focuses on supporting older people and their representatives to raise and address issues relating to accessing and interacting with Commonwealth funded aged care services. More info here http://www.opan.com.au/advocacy/

Are you a Carer in the ACT?

Are you one of the 46.000 Canberran’s who provides assistance to people living with disability, chronic health problems, mental health issues, are frail aged or are in foster or kinship care? If so then Carers ACT really want to hear from you about what would make Canberra a more carer friendly place that supports you and helps you to reach your goals.

James Sheahan Catholic High School

Thank you to the students and teachers at James Sheahan Catholic High School, Orange. Our local ambassador Nicole attended a school assembly for the recent cheque presentation. The student representative coordinator Winston West told us "At the beginning of each year, the SRC decides on a local, national and international charity to raise money for during the year. The national charity that they decided upon was MND NSW. As a group, we decided to hold a 'mufty' day where students wore blue to support MND and brought in a donation to go towards research. As a school community, we have many families who are coping with MND and so we thought it was a very relevant and important cause to raise the money for. As a school we raised $1430 which has now been donated to MND NSW."