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To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Marjorie’s Story

Marjorie is a one-of-a-kind, very special person. She started MND NSW back in 1981 (then known as Amyotrophic Lateral Sclerosis Society of Australia) after her husband, Bill, was diagnosed with ALS, the most common form of motor neurone disease (MND).

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Margaret’s Story

Margaret has been volunteering with MND NSW for just over 18 years.

In September of 2002, her husband was diagnosed with MND. At first she thought she would have at least a few more years with him but his illness progressed quickly.

Carer Gateway helps carers. Carer Gateway is an Australian Government initiative for anyone who is an unpaid carer.

If you care for a family member or friend, then Carer Gateway could help you.

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Ann’s Story

Ann, from Botany Access, has been raising funds for MND for many years, after her husband John was diagnosed with motor neurone disease in 2002.

The COVID-19 pandemic has literally disrupted every aspect of life, including how we grieve.

Researchers at the University of Technology Sydney invite you to take part in a research study that explores the experiences and support needs of people bereaved from any cause during the COVID-19 pandemic.