Whist watching the hundreds of walkers at the start of the Sydney Walk to d’Feet MND, I was reminded of a line from a beautiful poem shared with us from MND UK. “Because of you, there is HOPE, a harbour of love, courage determination, defiance, generosity.......walking shoes purpose and drive.”
The MND NSW e-news November 2018 edition was emailed to members and subscribers on 26 October. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.
A big thank you to the members of the Ballina Arts and Crafts Centre, Inc (BACCI) who generously donated $1,000 to raise awareness and help to purchase equipment for MND NSW. BACCI is a non profit organisation and consists of a group of creative artisans who enjoy displaying their artwork in a group, plus having fun along the way! BACCI held their annual Spring Exhibition in Ballina during September, and the group decided to choose MND NSW as their fundraising charity. Pictured is Deb McFarlane and Mary Richards with BACCI's donation.
You can participate in this international study aiming to find out if there is a relationship between levels of stigma and levels of psychological distress experienced by individuals with a diagnosis of MND. Researcher Natalie Leigh from Clinical Psychology programme at Lancaster University, Lancaster, United Kingdom, is seeking participants for her research. Anyone aged 18 or over who has a diagnosis of MND can complete an online survey regarding their experiences of stigma and well-being.
