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We all want more people to be talking about motor neurone disease. 'Baker and the Beast' is an ABC Radio Life Matters 5 part series that first aired during August 2018. It is a no holds barred account of how one family and a community of friends are responding to a disease that has no cure. Mother of three, Cath Baker knows the beast that is motor neurone disease (MND). As a critical care nurse she’d seen what this disease did to her friend Angie Cunningham. Then, in the cruellest of coincidences, Cath too was diagnosed. You can read more or listen to/download the series here.

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On 21 August ABC TV aired 'The Village' featuring former Foreign Correspondent reporter Sean Dorney who has MND, as he visited his beloved Papua New Guinea. You can catch up on this episode on ABC iView here and read the backstory from Cameraman, Craig Berkman, here. Many families living with MND will be able to find a lot in common, "Sean and Pauline take a fairly practical and good-humoured approach to dealing with this increasingly frustrating condition, so you might wonder where the emotion comes from for the rest of us since we're not the ones dealing with it...

The end of the financial year has passed and we're heading towards Christmas. We'd like to thank all of our supporters in 2017/2018. Large and small we could not have provided the services, support and research funding we do without your generous support. MND NSW remains the only organisation that support all people with MND across NSW and the ACT.

We would also like to acknowledge the ongoing support from NSW Health, NSW FACS, Gundaroo Music Festival, Run MND, Riddla Golf Day and The Newcastle Film Festival.

Thank you to the boys from Tumut Blues Rugby League Club who recently raised $6,200 for MND NSW. What a great effort!